sometimes reading other people's stories leaves me speechless. but, not for lacking words and feelings in my mind. i've had a long year full of events that usually don't happen to people all at once, or even at all. i hit the bottom during the summer and hit the bottle too. what i've learned, and it wasn't easy and still is being worked on by me--is that hey, we have one life, this is it. if we are fortunate to have good or even moderately good health, how we use our life and time is up to us. i want to live an authentic life. i have to balance being a mom of a basically disabled child, all the while live each day with my quest of living my life to the fullest. against my negative tapes in my mind and while attempting to change those tapes permanently.
my body isn't perfect, i'm 49 years old. i'm healthy. i really cannot complain. and if there is something i want to change, then i have to do it. not for anyone but myself, and though it's not easy, all i can say is why wait to live?
when someone with a fast progressing MS can write that she deserves joy not sadness from herself---all i can say is read her post and try not to be inspired and then look at your life and wonder if you are truly living.
~
One person who has been directly inspiring me with words of wisdom is Stan. He left a comment in this post of mine:
"Dear Steph:
Robert Frost is one of my favorite poets, and this is one of my favorite poems.
If only each of us could choose to take this road of our own true destiny as the path less traveled by; it would truly make all the difference.
This should also speak as a reminder to you and like others; to whine less and take authentic and earnest action more. The Mount Everest of symbolism in waiting as an hour glass to our earthly souls in each of our lives, just one step after another away as our pure and righteous path.
This is a worthy journey to grasp onto, and a waking dream to be revealed in all its magnificence and splendor.
Yours Truly,
Stan"
~
and this one from Valentine's Day discussing the artwork:
"Quite an Interesting work of art, that appears true to the day, as lovers embrace, emotional colors abound everywhere around them, the flowers are in vehement stages of bloom, and the pageantry of gold is representational of the frenzy of a single moment presented unabashed or altered by the virtues of time."
~
perspective.
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6 comments:
You both inspire me.
Love, love, love,
Ana
Time passes so very quickly!
May we all enjoy each day as much as possible.
I have been medically disabled for over 20 years now. I have realized I have been "waiting" for the "cure" the researchers had told me we'd have within 5-10 years of the onset of my initial disabling illness. (I had participated in their research for a number of years, hoping to help them to find the "cure" they had anticipated.)
I had stopped participating in research when I'd realized I'd needed to move forward and try to live as best I could with illness. I'd needed to stop postponing my life, waiting for the "cure."
I try to live my life as fully as I can...with each passing day. This life is very different than I had ever imagined. Yet, I am very grateful for the blessings I do enjoy.:) I still benefit from reminders to live life as consciously as possible.
Stephany, you, your family, your (family's) story... and the many people responding here... are all true blessings to me! :)
I had been a mental health advocate long before I'd ever become ill with neurological and autoimmune illness(es). I have remained an active mental health advocate for my entire life. [I did not experience any major mental health issues myself until more recently, as my brain/nervous system is often affected/targeted by these (now many autoimmune) illnesses.]
It's truly a blessing to me to have met up with you and your many loving and deeply devoted friends here. Truly.
Yes, Stan has quite a talent!:) I, too, find his writing highly inspirational! He offers yet another blessing to us all!:)
Thanks for reprinting his beautiful words! This blog entry is another true blessing, as it gave me the opportunity to again experience some of Stan's gifts!
I am very humbled by the many gifts shared here. I am in awe of the "community spirit," the mutual respect and the love shown unto one another here.
I hope all experience many blessings... great joy, too... in their lives!
With Deep Gratitude,
Hopeful Heart
hopeful heart, you are an inspiration here, I hope you know that you have really been a gift to me and my readers, thank you!
Dear Hopeful Heart:
Your words have not gone unheard in this comment section over the time you have posted here. You have much to say, many inspiring words of wisdom, and much love and support that flows from your open heart as a river of swirling and soothing waters flowing across our minds and thoughts.
I wanted to personal thank you for your strength, purpose, and giving spirit you have displayed time and time again here and on other blogs.
Yours Truly,
Stan
Stephany and Stan,
I thank each of you for your very kind words. I am so happy to humbly contribute in any positive manner. I am never sure of what to write, quite honestly. If I write, I humbly pray for direction...and try to trust the flow.
Each person's blogging/advocacy efforts have given me so much more than I have to offer, for sure!
I feel like I have found you (plural) on purpose!;)
It is truly a pleasure to get to know each of you and all of your blogging family members!
With Heartfelt Gratitude,
Hopeful Heart
(((HUGS))) hopeful heart :)
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