thanks for all of the excitement, and thoughts here everyone, it's really nice to have this support. i left this comment in a post below, which addresses many people's questions. there's much more i can expand on, but for now: (keep in mind this has been a decade of searching for answers and watching her react to psych meds, and having one psychiatrist tell me "face reality", besides telling my daughter she had a disease that would kill her if she went off meds by age 18. the childhood bipolar paradigm based on a medication treatment plan...any time i questioned it or the meds i was cast aside by doctors with degrading and condescending attitudes and words. forging ahead anyway--here we are today, with a small glimmer of hope that she will finally have some peace and hope she can recover from all of this.
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PANDAS was discussed thoroughly as all testing, genetics lab at childrens , lots of stuff over the past decade i pushed for, got the confirmation of depakote resulted polycystic ovary syndrome confirmed by a well known psych. (body damage from a drug not needed)
And, yes, PDD/aspergers at age 17 was presented to her in a meeting and even she agreed with it. self taught reader by age 4, walking encyclopedia, tested at age 8 college age 29 reading comprehension, etc.
she assisted autism spectrum kids in high school at the junior high when she was 17 and came home one day and said "i'm like them".
what we see now is someone who was tossed into a traumatic adult locked psych ward system on her 18th birthday sent there from childrens hospital..due to turning 18, and i fought for her to be returned to childrens on an exception which took me 9 days. she returned MUTE. (2006)
i asked for trauma to be addressed, for therapists to come in and find out what happened. it was a rough ward, and she returned bruised and all they would say was "the one concrete thing we know is she was over-drugged with high doses of ativan".
she is paradoxical to that drug and i had told the doctor that. they shot her up with drugs so bad and so did all of the hospitals...after the one doctor said PDD/aspergers, the adult psych system drugged her up hard, high doses and at one time was on 19 pills after a discharge.
all of that leads us to today: a person who some believe suffered trauma, trauma induced psychosis, and brain damage from the drugs, each doctor having their own "cocktail", imagine me with these ppl telling them the drugs are her problem.
finally got her down to one drug--clozaril the last 2 years, knowing that if she wanted to choose to lower it or remove it she had to decide and participate, and being mute the last 2 years were difficult to say the least.
she started talking in august 2009, said she feels like she was coming out of a coma.
so one day at a time and now it's being acknowledged that she again, was drugged for no reason.
thankful for this new doctor and i hope he does what he said he was going to do and find an super top doc in my daughter's pdd/aspergers category, who will, like him see her for who she is, and how drugs "are not designed for people like her" but trauma induced psychosis is there.
the police woman who handcuffed her face down in the gravel this summer triggered this episode, and all i can say is i am not done addressing that entire event.
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if you click on the labels below, you can see my series, where i chronicle the evolution of a diagnosis, and all throughout this blog, will read about buried data and research skewed for profit from drug industry, about Zyprexa and Risperdal and about Joseph Biederman and his push for the diagnosis, the 4000% increase of pediatric bipolar and how my daughter is in fact, a poster child for this American tragedy, based on profit by drug companies.
Children being placed on these drugs is dangerous, and there are STILL no long term studies done for efficacy use or safety use in growing children and their brains. my daughter suffered a decade on these drugs, at one point gained 100lbs while in junior high on Zyprexa....she deserved so much more than this.
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1 comments:
"...i'm like them..."
Hmmm. She's partly right, there... A person such as Lindsay (highly empathic, in other words), will see themselves in almost anybody, the difference being, perhaps, that these children were more accepting of her, which led her to perceive herself as like them. If she perceives that those children are *most* like her, of all the people she's met, then she will tend to associate herself with that group, and she may choose to adopt certain other of their characteristics, in order to fit in better (or that process of assimilation may merely be a matter of perception, on the part of the onlooker, it's difficult to tell, sometimes). That society, more widely, regards that group (autistics), as somehow aberrant is unfortunate. That's what I've noticed, anyway.
A bit abstract, again. Still.
Matt
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