Sunday, January 24, 2010

how'd the walk go?

Doctor's orders for a walk, on the books, in the chart for designated time today

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1. upon arrival a staff says "i've been telling her to get ready all morning".



i observe Linds in socks, no coat and notice her locker/closet key is not on the string around her neck. i ask her where her key is so she can get to her closet to get ready for the walk.

2. same staff walks into visiting room, saying the key was missing, someone found it and voila! here it is.

i hold out the string with the closet key on it and Linds leans her head forward for me to place it around her neck. we prompt her again, verbally and with written note to:

a. get coat
b. gets shoes
c. get ready to go out on the walk

after 90 minutes of Linds appearing to be anxious, pacing and not getting her shoes and coat, we decide to give her a heads up that we will be leaving soon, because in fact the designated outing time was going to run out.

3. 20 minutes left until walk outing pass expires, and i was told that in fact her coat was in the laundry.

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How to get someone like Lindsay ready for an outing 101

1. make sure when you prompt her to get ready she actually has the key to her closet and the items to put on such as shoes or the coat, other wise what was the point?

Lindsay, is sporadically speaking for the first time in years, is presenting predominantly as autistic, has been acknowledged by the team, and the on duty staff has seemed to not been briefed on how to get a complex patient such as Lindsay ready for a doctored ordered outing. it fell apart, because too much was expected of Lindsay, prompting her to get ready without a key to her locker and knowing the coat was in the laundry?

Upon arrival if i was told the coat was in the laundry I could have driven to a drug store and bought a cheap jacket, but that is not the point. How to get your patient ready for a doctor's orders outing with the patient/client needs met with appropriate methods.

The coat is in the laundry, i'm seriously shaking my head now, because we prompted Linds for 90 freaking minutes to go get her coat on and it wasn't even a possibility.

That, is undermining a very big day. what the hell. again, expecting a statef funded institution to do the impossible, for 500$ a day or so charge per patient.

Pay me, that's right, pay me $500 dollars a day, designate my house as a "housing", give me staff, respite and all of my daughter's needs met, plus the doctors, case manager, driving to appointments, to blood draws--oh wait, i already did that! she needs support, she is in the wrong system, she is stuck in a locked mental hospital as a disabled individual, come on, let's keep moving this mountain, just put on your thinking caps before going to work, dust off the license you earned to work out on the floor, oh wait is that required for hiring? i digress, this is a place for me to rant, so be it.

she deserves and has the rights to services and has for a very long time, if for example this is how it works, i took her home she loses all services and housing. i think she deserves a chance at independent living, and many people cannot imagine what i do for her, is advocate as a mother. she is their client, and she needs a voice.

10 comments:

wingsofpeace said...

sorry! so what are the conditions to get out of that place?

Noe Noe Girl...A Queen of all Trades. said...

it was a new coat. right? with new shoes. why did it need to be in the laudry after only a few minutes of wear? i am so confused???? <><

Stephany said...

the coat, they told me after 90 minutes at nearly 3 pm, was in the laundry, (yes new and issued to her)was being washed because she slept in the coat and she wet her bed.

get another coat out of the closet, call me, tell me upon arrival, and it was cloudy and light rain, nothing that the hood on the coat couldn't have handled, but what did they think we were going to do if she went outside?

the conditions? now it's as we go, and finding appropriate doctors and placement for her is the condition, and let me tell you, she better get decent care when she leaves this place, in the meantime, is it too much to ask that this rollercoaster of crap stops?

same staff who tried to cram the too small of shoe on her foot that first day and told me no shoes would be ready for a month did the "lost key is found" deal today.

no clue where the shoes are, but hell if she didnt have her key how would she go get ready?

what a joke, what happens in the board room is all good, what happens after that is what daily life is about.

i again, lower my standards to zero and let's see how it goes from there.

she will be in this place 5 WEEKS TOMORROW.

Lola said...

There is just no excuse for such game playing.

It's really sad they are doing this to your daughter.

Stephany said...

exactly, Lola and i wonder how the doctor will think in this situation, it's his orders, and his staff set her up for failure.

Lisa said...

I can only imagine how frustrated Lindsay felt, unable to do what is being asked because she doesn't have what she needs.

Stephany said...

exactly, Lisa.

exactly.

Mark p.s.2 said...

Communication failure. From ones point of view one can assume the other knows what you know. But they don't and then it turns into just like the game "telephone".
Telephone :"Most of you probably played it as a child. You would whisper a short sentence into someone's ear, and they would then turn and whisper it to the person seated on their other side. By the time the message had passed through a dozen people it was so different from the original it had everyone giggling hysterically."

But then the one without power ( the patient) is judged psychotic for not understanding, issued drugs for their disease, and the drugs make communication worse. Snowballing psychiatric diagnosis.

Herrad said...

Hi Stephany,
Very sad about this news was so happy yesterday thinking of you both on your walk.
Want to send you and Lindsey big hugs.
How horrible it went so wrong yesterday.
Can you see the doctor and let him know what happened?
Hope Lindsey can get a pass for next weekend.
This must have knocked you off your feet how horrible.
Both of you need a boost so you can have another go.
Onwards and upwards please do not lose hope always keep that alive and love do not let this horrible situation rob your humanity.
I mya not kbe phrasing this well hope you understand what I am trying to say.
BIG HUGS for you and Lindsey.
LOVE.
Herrad

Stephany said...

thank you all, and yes, Herrad you phrased that beautifully.