Thursday, January 21, 2010

the sky opened up with bright light


after a decade of advocating for my daughter and she for herself, today the new doctor asked me if i heard of a "savant".

Oh yes, my daughter, he understands who he has met.

as i sit here and write this, there are tears of such relief, that it is difficult to describe, the flood of emotion, all of the places she has been, all of the trauma, the hospitalizations, the recent summer time incident of handcuffing of an innocent young woman, who was non verbal---all was acknowledged today, at the new ward treatment team meeting. this team was compassionate, caring, knowledgeable, respectful and kind. they told me my daughter has endeared herself to them, and they love her.

the doctor said the medications are not designed for someone like her.

did you read that?

read it again. after a decade, finally! we have been heard.

the doctor said trauma such as the police incident can induce psychosis in someone on the autism/PDD asperger spectrum such as my daughter.

the doctor and team are going to work for an appropriate housing situation with peers , and a top notch out patient doctor specializing in aspergers.
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my shining, witty, brilliant and wonderful daughter has finally been acknowledged and my battles for her over the years about her and the meds have been acknowledged, and on sunday we have a day pass to go outside on a walk.


needless to say, what a positive meeting at the new ward, i am thankful, very thankful for the input and interest they have taken in my daughter, and my quest for a positive discharge outcome.
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thank you to all of my readers here who have written letters and prayed, and send messages and emails, and love this way. my daughter has many guardian angels in this world, thank you.

i want to tell you, here that many, many days are grueling and many times, i felt like giving up, and the one person i was fighting for is the reason i did not. and the many people i have met over the years are reasons, and i am not giving up and will never give up. and thank you to my friend and my daughter's advocate, for encouraging me to keep focused, and for speaking up on her behalf, for her rights, what a gift.

this was truly a defining moment today, in regard to the care of my daughter and the hope given for a better future and care has been given to us and to her.

Here's to hope, let the bell ring loud and clear.

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this is a photo of the 50 year old bell i was allowed to ring over 2 years ago when i was at the time finding her a place to live in an unlocked facility as opposed to the state institution where she is now. at the time, a previous doctor had told me "she has no hope". i refused to listen. so, i went to the place where the bell is, and asked to ring it, in honor of my daughter. and it rang, it rang out across the hills. and she was not sent to the institution that time.


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today, the state institution ironically is where hope, was found. speaking up was at times an uncomfortable situation, but our voices were heard, on behalf of my daughter.


life is a circle, hope is often hidden in dark shadows, or blocked by clouds. i must write here, what i believe and always have, "one voice can and does make a difference", and many voices in a choir are heard.

rejoice! this is a new beginning. the rest will unfold as it happens. i'm living in the moment, oh yes, i am. i can't wait until sunday to go on the walk! you should have seen her smiling face when we told her.


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i love you, Linds.

13 comments:

Matthew Isaacson said...

I think I can speak for all of your readers in thanking you for sharing such good and uplifting news!

Lisa said...

I'm pretty jaded about inpatient treatment, but this gives me a wee bit of hope that there are still some people out there who give a damn.

Lola said...

This is wonderful news. I'm so happy you both!

Noe Noe Girl...A Queen of all Trades. said...

My heart is filled with joy reading this. I am so happy Steph. And I can see your baby smiling in my mind. I can hear your smile.
Here's to today. And Sunday.
<><

Stephany said...

thank you all--Lisa, totally understand the skepticism, it's very "too good to be true" category, but just relish the moment---and it's not just outdoor time offered daily to her now---now we finally after a solid 5 weeks (day after sunday will be the 5 weeks mark)we will be going outside on a pass, getting her used to getting outside again with us, the world will be at her finger tips that day, walking, parks, freedom after 5 long months total.

i did feel like i was going to vomit as i walked the flights of stairs to the ward today, i didnt think i was going to be able to talk.

but i was able to, and talked a lot about her, and by doing that, i remembered so much about my daughter...well anyway, i'm holding them to this meeting, they lit the flame, so let's hope it all works out, imagine her one day not being on antipsychotics.

a decade long struggle for her.

they already got her a horse book.

:)

Borepatch said...

YAY!

Happy dance!!!

Lisa said...

Stephany, so many thoughts right now. All of them good. :-)

Rossa Forbes said...

It sounds like Lindsay is finally going to receive appropriate treatment. This is so encouraging.

Laura said...

This is absolutely wonderful news.

Radagast said...

Savant? Hmmmm. What did they see that others haven't, I wonder?

I don't think that there's any doubt that she thinks very quickly (not in my mind, anyway). That is, her electrochemical signals get sent at the same speed as everybody else's, but she organizes her thoughts in a very precise way, which allows her to come to sound conclusions quicker than others.

How did she teach herself to do that? Trial and error? That must have been hard work, although I get the impression she's trying to develop perfect solutions to problems, when she's not being permitted access to all the necessary information, so she's having to fill gaps with best guesses. I think she has to accept that some problems exist because they represent a benefit to others, and they don't want them fixed. Hmmm, that's rather vague and abstract.

Anyway, good news.

Matt

Mark p.s.2 said...

Great news!

Jennifer George said...

Wow! That's awesome. What a relief!

Meg said...

Stephany, this literally made me cry. I am so happy for you and Lindsay.