Monday, January 18, 2010

WSH field of dreams, and shoeless joe jackson


while visiting my daughter today the announcement overhead declared "the following people are eligible" for the 4pm "fresh air break". last name on the list, was my daughter's!

"she's been outside 2 times already", the staff said.

"what shoes did she wear?", said her advocate and friend.

"i don't know that wasn't my shift, they told me, i don't know", the person said.

i opened the door of the visiting room and walked to the nurse's station and said, "do you have any shoes?". basing this on my knowledge from the past, that the hospital provides athletic shoes, with velcro straps to patients. knowing my daughter arrived to the hospital on 12-21-09 in plastic slip on sandals, and the only thing she owns personally are pink fluffy slippers.

"what size does she wear?" i tell the size and they say they only have one pair of shoes left, and it was not her size, too small, though my daughter struggled to get the shoes on her feet they were too small.

"we won't have more shoes for one month. doesn't she have shoes at home?", the person said.

(no, she hasn't lived at home for 2 years and the shoes she had on her feet were missing when the police found her at 1am in october 1/2 clothed and lost, in 40 degree weather, story goes on from there, we all know it by now right?)

they rushed her to get the shoes on, the patients were waiting! oh, too late! another person walks in the visiting room, i asked where her pink slippers are, as i have not seen them on her feet since she arrived there, and wondered if they were lost. that staff went and unlocked her closet, found the slippers, telling us my daughter's key didn't work for her belongings closet. does she have a new key or not? what about getting her things out?

--

if she went outside 2 times before today it was barefoot.

the patient has no shoes, could that now be handled? we have not even begun to talk about a treatment plan or mental health wellness goals, we are at the stage of what? take her outside? shoes? what shoes? locker key? what locker key?

i have decided to lower my expectations and walk my field of dreams where people have high standards, as high as my own as a mother.

---

she enjoyed our visit, and i will be bringing her a ball to take outside, and i hope they have found WSH issued shoes by then, because what if i wasn't there to notice she had no shoes on? are they honestly saying they walked her through hallways and out to the outdoor enclosed area barefoot?

--
Addendum:
IN 1998, at age 10, my daughter attended a girls basketball clinic. she is the one on the left in both of these photos, which are blurred due to a quick snapshot of the photos on the kitchen counter tonight.this women's basketball team is a part of the detailed fabric, so intricately woven before my daughter ever saw a psychiatrist.

Life was different then, and I wasn't bankrupt due to medical bills and out patient care for my daughter. (just in case anyone wonders why I do not have unlimited funds for private care or, at minimum, shoes. as a mother, this is an unfathomable topic. when others do care for my daughter, i expect nothing less than high standard of care, minus the red tape, etc.)

Advocate perspective with the humor that allowed me to hear my daughter's laughter after 3 years

find a tiny bit of laughter within the muffled darkness
--






8 comments:

Lisa said...

Bureaucracy at its finest. Reminds of trying to get saline solution. They asked why I didn't bring my own. Who packs to go to the psych ward? I came with the clothes on my back. I had to store my contacs in tap water because they couldn't be bothered to look for any saline, which felt great to stick in my eyes the next morning. It took a screaming fit on my part a couple of days later before they magically found some saline. This wouldn't be acceptable in a regular hospital, but in the psych hospital nobody gives a crap because who's going to make them? Glad she's got you.

Herrad said...

Hi Stephany.

Like Lisa I too am glad your daughter has got you.
Keep warm.
Love,
Herrad

Laura said...

This is horrible. As a parent myself this situation would break my heart. I can only imagine how distressing it must be for you.

Noe Noe Girl...A Queen of all Trades. said...

Speechless once again.
<><

Radagast said...

Well, at least she's getting outdoor time, although it does look rather chaotic...

I think you're going to have to accept that nobody is going to care for Linds as you do, and just be prepared to fill in the blank bits, that others miss. Who knows - maybe, just maybe, they'll provide something that you wouldn't have thought of, occasionally?

Matt

Stephany said...

Well, Matt, if you want to believe them that she went out twice...I'm not convinced, but if she did, and she was barefoot in January walking long corridors and out to cement...isn't it common sense to place shoes on someone's feet? stubbing of the toes, cuts, abrasions, dirt, I mean come on, this is such bullshit at this place, it's turned into a circus trying to make me happy, and they have missed the point, the person in need.

It took a month to see anyone make an effort to take her outside yesterday, and THEN they are asked what shoes she wore by us and they had to scramble like a bunch of....

well, it speaks for itself about our mental health system in washington state, another fine example, of it.

Radagast said...

Yeah, I hear what you're saying... I think they need to be able to see you and Stan as people who are representing Lindsay's wishes, and not people who are merely attacking WSH, because when people feel under attack they'll either be terrified of doing anything in case they do the wrong thing, or else they'll attack back. Neither scenario is likely to help Lindsay.

I know you're not well-placed, financially, but it might be worth saying "fuck it, I'll get the shoes, on this occasion." That's not something you want to be doing on a regular basis, because WSH is supposed to provide them, but if it means that Lindsay can go outside in comfort a month sooner, then I guess it's the path of least resistance.

You know, you're changing their perspective, just by being there, don't you? Most patients don't have people who visit regularly, or at all. Not only do you visit, but you show that you care. Speaking as one whose family disowned him in such a way that would seem to demonstrate that they had no emotional investment in me, at all, that means something. They know (and Lindsay knows), that Lindsay's important, because you've told them so, but they don't know how to fix her, which places them in a vulnerable position, seeing as they're supposed to be the ones with the expertise.

They're learning something from you, Stephany, although they may never admit it, nor even realize it - they're learning that the people who the rest of society couldn't give a shit about (if it did, there'd be a public outcry), *do* matter, and they'll learn why, soon enough.

Matt

Stephany said...

Well, being we were told she wasnt going outside, no shoes were needed yet, and when they finally grandstanded the outdoor time yesterday, asking me if she had shoes at home wasnt going to give her shoes that very minute they asked her if she wanted to go outside.

The shoes I did recently purchase, were not on her feet when she was found lost and missing from DSHS ran residential facility--the place that refused to call police and only called me to tell me she was missing 3 hrs after noticing she was gone.

Also, i was instructed NOT to bring in clothes, etc so she wouldnt have to monitor her clothing being placed in wrong laundry containers, etc, and the first day she arrived to this ward on 1-11-10 the nurse told me and stan they would get her shoes, because i asked that day.

all of these years, i have purchased lindsay's clothes, sadly many are lost continually in hospitals, stolen, and this place is no different.

the coat i brought into her a couple of weeks ago is already gone, and now i will have to buy another one.

this is a very big picture, about the care of medicaid patients in their entire system.

honestly, at her last group home the people look homeless, they are homeless, that IS home for many of them forever, and they have nothing. rare visitors or family left too.

it's just so not about the shoes, it's about DSHS responsibility to their adult client, my daughter.

IF i took her home today, she loses all services and housing opportunities for independent living, and that is WRONG.

I could have walked in that building with shoes, a coat and a basketball last week and I can guarantee she wouldnt have been taken outside.

yesterday was a result of the letters and in person we are quiet, focused on visiting time which is precious time with Lindsay, giving her a break, and laughing with her a lot.

so, because they are regular readers now (DSHS wa gov) maybe they can read a little and get to know what this is like, because it is true, they do not have to "deal" with many parents like me, sadly, sadly, many ppl are alone.

and I have not asked for much, so far going outside.

but, yes they will take this as anti WSH, ive already had that talk with someone in the system, and once they spoke to me in person and heard the gut wrenching stories about my daughter's care, they understand more.

so let them read, so far they are thinking it's a PR problem, and it is not.

Its care for lindsay, who, i hope is OK today.

yesterday she made a very awesome play doe sculpture and made faces at stan, she is so funny.